News and Updates
11 June 2021
Our inaugural Giving Day
We are excited to announce our Inaugural Giving Day which will launch on Monday, 21 June 2021 at 10:00 am AEST.
This Giving Day, help us empower over 15,000 Australians living with an inherited retinal disease by supporting our medical research projects, which will change lives!
For 24 hours only, your gift will be DOUBLED thanks to our generous matchers. Please view www.charidy.com/retinaaustralia.
Get involved this Giving Day and help us create a brighter future for every single person living with inherited retinal disease. Spread the word amongst your family & friends and please like and share our Giving Day posts on Facebook.
12 March 2021
Do it in the Dark™ 2021 Fundraiser Launch
We are excited to announce the launch of our brand-new fundraising event taking place between March & April 2021, Do it in the Dark™.
The concept of Do it in the Dark is simple – gather your family, friends, or co-workers and do an everyday activity like you normally would, while wearing our custom-made glasses which simulate tunnel vision. Tunnel vision is a common symptom that people living with an inherited retinal disease often have, and by wearing these glasses you will be able to better understand the daily lives of people who have debilitating vision issues.
You could have a meal together, watch movies, organise a morning tea, go for a walk (with a sighted guide) or even play some video games. Take some photos (and upload your favourites to social media) with your group while wearing the glasses, discuss the impact of inherited retinal diseases and raise vital funds which will go towards medical research programs. A one-hour event is all it takes to show your support, and a free fundraising kit will be mailed out when you sign up. There is currently no cure for those living with an inherited retinal disease, but we get closer every day because of the generous support of our donors.
View the clickable links below to learn more about this exciting event:
If you have any other questions about Do it in the Dark, you can phone (03) 9650 5088 or email email@example.com.
19 November 2020
Retina Australia 2021 Grant Recipients Announced
We are pleased to announce that the 2021 recipients of the Retina Australia medical research grants are Dr Lauren Ayton (The University of Melbourne), Professor Alex Hewitt (The University of Tasmania), Dr Fred Chen (The University of Western Australia), Associate Professor Heather Mack (CERA/The University of Melbourne), and Dr Jennifer Thompson (Sir Charles Gairdner Hospital). These grants have a combined total value of $160,000.
Congratulations to the researchers and their teams, we look forward to hearing about how things progress over the next twelve to eighteen months. Thank you to all of our supporters across the country, for without your generous donations, we would not be able to help fund these important programs.
1 October 2020
Webinar Event: Gene therapy, clinical trials and new developments in IRD research
The regulatory approval and commercialisation of Luxturna in 2017 has opened the floodgates for gene therapy, with numerous clinical trials underway or rapidly approaching. Dr Tom Edwards and Dr Lauren Ayton will update Retina Australia members on the national approach to identifying and characterising people who might be eligible for these trials (through the Inherited Retinal Disease Natural History Study), as well as describing the most promising developments in the field.
25 September 2020
Retina International announces the launch of Know Your Code – a genetic testing advocacy portal to mark WORLD RETINA DAY, September 26th, 2020.
Retina Australia Chairman, Leighton Boyd, provides his thoughts on the need for accessible and affordable genetic testing. You can view the official Retina International press release via Word option here and via PDF option here.
17 September 2020
I Spy, With My Bionic Eye – Herald Sun article featuring Retina Australia Chairman, Leighton Boyd
Retina Australia Chairman, Leighton Boyd, was recently featured in the Herald Sun article ‘I spy, with my bionic eye’. The article discusses a revolutionary device – an implant and camera headset – produced by Monash Vision Group that could help people who are blind to see again. Credit to Herald Sun, journalist Alanah Frost & photographer David Caird. View the Word option here and the PDF option here.
11 August 2020
For any new or current members that wish to learn about how we operate, you can download a copy of our constitution here.
18 June 2020
Webinar Series 2020 – 2021
We are excited to bring you a series of informative online webinars over the next year. Members will have access to all events and non-members will be able to pay a casual fee for individual webinars. If you want to learn more about how you can access these webinars, you can send an email to firstname.lastname@example.org or phone (03) 9650 5088.
Our first webinar will take place on Thursday 13th August at 1:00pm EST and will discuss genetic analysis and how this can help patient management and the development of therapies for inherited retinal diseases.
26 May 2020
2019 Annual Report and Chairman’s Report available for download
We are currently updating our website to include annual reports and other important documentation. For now, you can find a copy of the 2019 Annual Report here. You can also find the Annual Chairman’s Report here.