News and Updates


Friends of Retina Australia Perth Social Gathering and AIRDR Presentation

We held our Social Gathering and Presentation on Saturday, 21 September 2019. The event was organised and hosted by our friend Lyn so we must give her a warm thank you!

We're excited to say that we had a total of 41 people attend the event which was a fantastic result.

The team at the Australian Inherited Retinal Disease Register and DNA Bank (AIRDR) gave very enthusiastic insight into what they do and some current research being undertaken.

Lyn caught up with most of those who attended and everyone said how much they enjoyed the presentation by the AIRDR Team.

We would like to say a huge thanks to the AIRDR Team and all those who attended.
For those of you who couldn't make it, Lyn has recorded the presentation and we've uploaded it below so you don't have to miss out! The recording is approximately 1 hour and 7 minutes long.


2020 Grant Applications are closed

Our 2020 Grant application period has now closed. Currently our Grants Assessment Committee, headed by Professor John Grigg of The University of Sydney School of Medicine, are assessing the applications. Applicants will be notified whether they are successful before 31 December 2019.​


2019 Grant Announcements

Congratulations to Dr Livia Carvalho from the Lions Eye Institute in Perth, Professor Nigel Lovell from the University of NSW, Dr Michael O‘Connor from Western Sydney University, and Dr John De Roach from the Australian Inherited Retinal Disease Registry and DNA Bank, for being awarded Retina Australia Research Grants for 2019. These grants have a total value of $159,900.

This brings the total amount provided by Retina Australia for research since these grants were established twenty years ago, to more than $5.5 million dollars.

Dr Carvalho‘s project is entitled ― Dual AAV retinal gene therapy approach for Usher 1F treatment. Professor Lovell will be studying the topic ― Improving the global acceptance of retinal prostheses: Assessing the influence of different stages of retinal degeneration on selective activation of retinal ganglion cells; and Dr O‘Connor will be investigating ―the mechanism by which C.1 rescues some functions in Best Disease Retinal Pigment Epithelium.

The Australian Inherited Retinal Disease Registry and DNA Bank team under the leadership of Dr De Roach will continue their maintenance and development of the Registry and DNA Bank. We look forward to hearing reports of this work over the next twelve to eighteen months.