We Have a Vision; We Want People to See
Inherited Retinal Disease (IRD) is the most common cause of blindness in wealthy countries such as Australia and the leading cause of youth blindness globally. IRDs affect 1 in 1500 people; that’s over 16,000 Australians and more than 20 million people worldwide.
Whilst IRDs are inherited genetic anomalies, for approximately 50% of newly diagnosed patients there is no known IRD in the family.
Right now, when someone is diagnosed with an Inherited Retinal Disease, there is little that doctors can do. The newly diagnosed can expect a progressive, relentless loss of sight, and ultimately, irreversible blindness. It can take years or decades, but it will happen.
There is currently no cure or effective treatment.
We want to change that.
Retina Australia is a volunteer led, membership organisation that raises funds to support medical research into early detection, treatment and a cure for inherited retina diseases.
The funded research areas have included gene therapy, stem cell therapy, artificial prostheses, and the psychological or sociological aspects of living with an inherited retinal disease. Individual members have also personally contributed to Australian research through personal interviews and non-invasive testing.
As of 2019, Retina Australia has become a single national body with associated groups in the states and territories and a national office in Melbourne.