Leighton first became involved with Retina Australia as a board member in 1987, when it was known as the Australian Retinitis Pigmentosa Association.
Leighton has been an Australian delegate to Retina International congresses over many years and is proud to say that he was closely involved with the planning and implementation of the extremely successful Retina International World Congress held in Melbourne in 1988. Since then, he has witnessed the growth of Retina Australia into the strong organisation it has become today.
During the intervening years, apart from a gap of four years, he has worked tirelessly to ensure that people like himself who are personally affected by an inherited retinal disease are supported, and that information about their conditions is freely available to them.
Leighton is committed to working with board colleagues to ensure that funds are raised to support Australian research into inherited retinal disease and that any monies collected are disseminated to worthy Australian research projects. He has also helped raise the profile of inherited retinal diseases amongst researchers through his involvement in organising three national congresses in Melbourne since 2000.
Leighton looks forward to continuing his contribution to Retina Australia and learning about the advances in research which may ultimately benefit those affected by inherited retinal disease. He is dedicated to working with all members to ensure that there is light at the end of the tunnel.
Jeremy was appointed to the national Board as a director in 2014 having joined the management committee in Western Australia in 2008, becoming Western Australian Treasurer in 2009. He took on the role as treasurer of Retina Australia in October 2016.
Jeremy has over 25 years’ experience in commercial and corporate roles in the Land-use Planning, Energy and Financial Services sectors, with a proven track record in senior management and consulting roles for the last 9 in such diverse areas as strategy, planning, finance, risk management, policy and stakeholder relations.
Jeremy is a Certified Practising Accountant, a Fellow of the Australian Institute of Energy and an Associate Fellow of the Australian Institute of Management.
Rosemary joined the board of Retina Australia in 2008 having been nominated by Victoria for a position as director. Since then, she has worked closely with fellow directors to promote the cause of Retina Australia and to ensure that monies raised for research into inherited retinal disease is allocated by grants to Australian researchers on the advice of the Grants Advisory Committee.
Rosemary was appointed as honorary secretary of the organisation in 2013, and company secretary in 2016. She is responsible for arranging, and recording all details of, meetings of the board and general meetings of members. All aspects of administration and correspondence are included in her portfolio.
Rosemary represents Retina Australia at events, and on committees, of various affiliated organisations across Australia and world-wide and has attended Retina International meetings as a delegate since 2010.
Rosemary is passionate about the mission of Retina Australia and is working hard to ensure that its goals and objectives are implemented in order to make a difference to all those affected by inherited retinal disease.
Noel joined the board of Retina Australia in 2016 and has been part of the management committee in the ACT. His son Christopher has lived with retinitis pigmentosa and Noel’s mother Barbara Burton has been a long-time Board member and previous president of the ACT management committee.
Noel has been an editor the the ACT newsletter in the past and now assists with the national newsletter.
Noel is a surveyor and teacher at the Canberra Institute of Technology and has spent most of his surveying life training surveyors both locally and internationally.
He has a keen interest in technological advances for the vision impaired having travelled to Canada with Chris to be fitted with a pair of Esight Eyewear Glasses. Chris also contributes to the newsletter about visual aids he uses in his day to day life.
Since being diagnosed with retinitis pigmentosa in her early 20s, Melanie has remained actively involved in Western Australia in raising awareness of problems associated with vision loss and providing support to others who may be affected.
Melanie has a university background in public health (Nutrition and Health Promotion) and has worked with the Western Australian and Victorian Government for over 15 years in development and delivery of initiatives to improve outcomes for disadvantaged groups.
She currently works for the WA Primary Health Alliance and volunteers as Chief Editor for the United Nations Association of WA.
Robert is a retired operations manager from New South Wales with 50 years’ experience working in management roles in various manufacturing companies.
He has retinitis pigmentosa and is now considered to be legally blind. However with fair central vision Robert states he can go about his normal life, with a few limitations.
Robert is married with four children and ten grandchildren who occupy a lot of his time.
Julie joined the Board in March 2017 having been a member of the management committee in Western Australia since August 2014.
Currently working in the government sector, Julie has gained extensive administrative and project experience in the government/non-government and not-for profit sector. From 1996 to 2000 Julie was employed as the Administrator at CanTeen WA, an Australian organisation for young people living with cancer offering support, information, and resources.
In September 2015, Julie obtained a Graduate Certificate in Business from the Curtin Graduate School of Business.
Peter Maas is a retired primary school principal. Educated in Victoria and South Australia he worked for the South Australian Education Department in both metropolitan and regional areas as a teacher, principal, consultant and superintendent. Peter was diagnosed with a slow moving form of retinitis pigmentosa in his mid-thirties. The advancement of the disease prompted his retirement in 2010.
Peter has served as a member of the South Australian management committee for over ten years, including serving as secretary. He is an active member of a local Rotary Club where he is also the current Secretary and a Past President. He was nominated by South Australia for a position on the Board of Retina Australia in November 2010.
He is committed to the challenge of ensuring ongoing funding for research into a cure for RP and other retinal dystrophies.