Individual Stories


I have autosomal dominant Retinitis Pigmentosa. My grandfather, father and brother also have it.

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Melanie Chatfield

If you are looking for me, chances are I will be travelling to far flung places, horse riding, hiking, rock climbing, scuba diving or attempting to ski.

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My dad Arthur is a determined, fiercely independent, unassuming, kind and generous man. He has never been defined by his RP blindness nor seen it as a disability.

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Jonathan Goerlach

Diagnosed with hearing loss at age 3 and Usher Syndrome Type II at age 15, Jonathan wears hearing aids, has no peripheral vision and is night-blind.

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