As an Australian volunteer-led charity, Retina Australia funds world-leading research into treatments and cures for blindness caused by inherited retinal disease
I have autosomal dominant Retinitis Pigmentosa. My grandfather, father and brother also have it.
If you are looking for me, chances are I will be travelling to far flung places, horse riding, hiking, rock climbing, scuba diving or attempting to ski.
My dad Arthur is a determined, fiercely independent, unassuming, kind and generous man. He has never been defined by his RP blindness nor seen it as a disability.
Diagnosed with hearing loss at age 3 and Usher Syndrome Type II at age 15, Jonathan wears hearing aids, has no peripheral vision and is night-blind.