TREATMENTS

At present, there is no treatment to halt the progression of any retinal dystrophies. No convincing scientific evidence demonstrates any benefits for individuals with RP from the many unproven treatments that have been attempted. However scientists investigate even the most remote possibilities.

There is no scientific evidence that normal light levels worsen the symptoms. However, individuals with retinal degenerations are encouraged to protect their eyes from long exposure to bright light as a precaution. In dim light, they may use their eyes to the degree possible without fear of worsening their condition.
When only one person in the family is affected, it is difficult to decide how the condition is inherited.

Many hereditary diseases may affect the retina, each with symptoms. Conditions include Retinitis Pigmentosa (RP), Stargardt disease, Usher Syndrome, Best disease, Cone Rod Dystrophy and Choroideremia.

In order to determine the likelihood of your children and other members of your family being affected, you should consult your doctor or seek genetic counselling. Because retinal dystrophies usually run in families, all family members are encouraged to have a thorough eye examination.

Professional genetic counselling is generally advisable.